Edwards Syndrome Awareness day
Today is Edward Syndrome awareness day. Today is about raising awareness of what Edward Syndrome is, celebrating children like Evangeline and changing the narrative of Edwards Syndrome being "Fatal" and children with Edwards Syndrome being "incompatible with life." It is also about fighting for equal rights for children with this diagnosis. Until October last year I had never heard of Trisomy 18/ Edwards Syndrome. Now I'm part of an online community that shares their stories, shares medical tips, comforts each other after a loss, writes books, creates charities and offers hope to other parents who receive a diagnosis. Without this online community, I would have believed that a baby with Trisomy 18 can not survive. We were given outdated information by Wellington Hospital, that was literally written in the 80's we have come a long way in medical advancements since the 80's! Google is not much more hopeful. It was hard to hold out hope to meet Evangeline a...